-08-27T00:00:00Z Request Information RFI): Input Information Resources Data-Related Standards Widely Used Biomedical Science Notice Number: NOT-CA-14-054 Key Dates Release Date: August 27, 2014 Response Date: September 30, 2014 Related Announcements None Issued National Cancer Institute NCI) National Institute Allergy Infectious Diseases NIAID) National Institute Biomedical Imaging Bioengineering NIBIB) National Institute Dental Craniofacial Research NIDCR) National Institute Drug Abuse NIDA) National Institute General Medical Sciences NIGMS) National Institute Minority Health Health Disparities NIMHD) National Library Medicine NLM) National Center Advancing Translational Sciences NCATS) Office Strategic Coordination Common Fund) Purpose this Request Information RFI) Notice, NIH invites comments ideas interested persons inform consideration an NIH Standards Information Resource NSIR) would collect, organize, make available the public trusted, systematically organized, curated information data-related standards. resource focus those standards are widely used biomedical research related activities. main purpose the NSIR be help variety biomedical users such researchers, clinicians, data curators, informaticians, among others, identify choose data-related standards are best suited their needs. NSIR a potential initiative the NIH Big Data Knowledge BD2K) program part efforts facilitate broad of biomedical research data. is envisioned such data standards themselves become specific, citable digital objects within digital research ecosystem, Commons, envisioned the BD2K http://www.open-bio.org/w/images/d/dd/Bosc2014-bioinform.pdf ). Background September 25 26, 2013, NIH BD2K-sponsored workshop held NIH Frameworks Community Based Standards Efforts. of themes emerged the workshop that investigators other users to choose among wide variety sometimes overlapping standards. require information these data-related standards order choose those best suited their research. Such information be most useful it easy-to-find, systematically organized, consistently presented a curated, trusted, publicly available resource. Modern biomedical research generates huge volumes heterogeneous data through worldwide network organizations. Extracting, storing, analyzing, sharing, harmonizing, integrating data critical present challenges. use data-related standards the first step ensuring data be shared understood. Standards applied data facilitate flow data between various data resources. provide well-defined syntax along semantics definitions methods, protocols, terminologies, common data elements, specifications the collection, exchange, storage, retrieval information associated these data. selection a particular data-related standard determines whether how data be shared, integrated, and/or transformed another format use other specific data, tools, resources. the past, standards biomedical data often selected without consideration issues beyond those related interacting nearby systems and/or storing legacy purposes. Now, data frequently need be shared much widely reused other purposes including data integration. more biomedical research data become available digital form as value interconnecting heterogeneous data, tools, resources becomes integral the science itself, investigators' choices data-related standards need be deliberate as best serve needs their research potential secondary users. Towards goal, NIH Big Data Knowledge BD2K) initiative considering creating publically available web portal-based NIH Standards Information Resource NSIR) data-related standards are widely used biomedical research related activities. information resource help investigators identify choose data-related standards are best suited their needs. would also connect and interact other NIH-supported information resources, such a planned NIH BD2K Data Discovery Index, software index under consideration, planned BD2K Centers Excellence, NIH RePORTER extramural funding information query tool, the biomedical literature PubMed). standards documented this resource be included citable digital objects within digital research ecosystem, Commons, envisioned the BD2K http://www.open-bio.org/w/images/d/dd/Bosc2014-bioinform.pdf ). Information Requested NIH BD2K seeks input two broad areas, are: 1) useful usable content an NSIR NSIR Content); 2) relevant existing efforts could inform development and/or enhance e.g., synergizing with) NIH NSIR Current Relevant Efforts). information help maximize impact such community resource facilitate use investigators a broad range expertise. 1) NSIR Content - Metadata standards Please comment the metadata standards would provide most benefit end-users within NSIR why, on information may more effectively provided through links other resources, e.g., detailed documentation, articles describing of standard, etc. Items interest include are limited to: Purpose which standard used; Examples other standards, data sets, tools, data resources which standard interoperates; Whether standard endorsed, encouraged, used particular organizations, initiatives projects; Whether standard open proprietary; to access standard; Published available format(s); Provenance and/or point contact the standard; was standard last updated version identifier; Ease use support available those want adopt it; Location documentation the standard; this metadata standards might used the context the planned Research Commons referenced the Purpose Background above. Ideally NSIR contain variety widely used data-related standards applicable many areas research such imaging genomics standards. Comments the standards and/or types standards you consider most critical include why are most critical) invited. applicable, comments how standards and/or types standards been produced, validated utilized respondents' and/or collaborators' work also welcome. resource contain information widely used data-related standards, wide can different meanings, e.g., broad across domains intensive in single small number domains. Comments the criteria might used determine whether data-related standard widely used" invited. 2) Current Relevant Efforts Comments include existing relevant resources data standards how are currently useful end users respect the goals stated above, well their limitations. addition mentioning organization(s) leading participating the resources related efforts, respondents encouraged include any lessons learned these efforts the creators users. Include links references, possible. Submitting Response responses must submitted electronically BD2K_NSIR_RFI@mail.nih.gov September 30, 2014. Please include Notice number NOT-CA-14-053 the subject line. Responses this RFI Notice voluntary. Responders free address any all the categories listed above. submitted information be reviewed the NIH staff. Submitted information be considered confidential. facilitate analysis the responses, the beginning the response, please indicate of following viewpoints are representing well other relevant information such your organization, scientific, clinical domain, your role respect creation use data-related standards: End-user biomedical researcher; Library information scientist; Bioinformatician; Data curator; Research database manager; Standard developer maintainer; Publisher; Biotech company employee; Tool services vendor; Other. request for information planning purposes only should be construed a solicitation as obligation the part the Federal Government the NIH. NIH does intend make any awards based responses this RFI Notice to otherwise pay the preparation any information submitted for Government's of such information. NIH use information submitted response this RFI Notice its discretion will provide comments any responder's submission. information provided be analyzed may appear reports. Respondents advised the Government under obligation acknowledge receipt the information received provide feedback respondents respect any information submitted. proprietary, classified, confidential, and/or sensitive information should included a response. NIH the Government reserve right use any non-proprietary technical information any future solicitation(s). Inquiries Please direct inquiries to: Sherri de Coronado National Cancer Institute NCI) Telephone: 301-480-7172 Email: decorons@mail.nih.gov nbsp; 2027-01-01T00:00:00Z
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